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Celine Dion, the legendary voice behind “My Coronary heart Will Go On,” is constant her battle with Stiff Individual Syndrome—a uncommon and debilitating neurological dysfunction that has pressured her to step again from performing. In Could 2023, the 57-year-old singer canceled her Braveness world tour as a consequence of issues from the sickness, calling it a “super disappointment.”
“It’s not honest to you to maintain suspending the exhibits,” she informed followers in a heartfelt assertion, “and though it breaks my coronary heart, it’s finest that we cancel every little thing now till I’m actually able to be again on stage once more.”
Regardless of her well being challenges, Celine made two shock public appearances in 2024: presenting Album of the Yr to Taylor Swift on the Grammy Awards, and performing on the opening ceremony of the Paris Olympics—each moments that reassured followers and drew standing ovations.
Nonetheless, concern for the Canadian celebrity stays excessive. In mid-2025, false rumors claiming that Dion had died started circulating on-line, prompting followers and media shops to fact-check the claims. Representatives for the singer rapidly confirmed she was alive, urging folks to be aware about spreading misinformation.
Celine’s legacy spans a long time, with 5 Grammy Awards, a record-breaking Las Vegas residency, and worldwide fame cementing her place in music historical past. Her final full live performance efficiency was in July 2019 at Hyde Park in London. Since revealing her analysis in December 2022, she’s saved followers up to date via statements and, most not too long ago, a deeply private documentary that chronicles her battle with the sickness.
Right here’s every little thing to learn about Celine Dion’s situation, how she’s doing right now, and what’s subsequent.
Celine Dion Was Identified With Stiff Individual Syndrome
Celine shocked the world with somber information in 2022 when she revealed her Stiff Individual Syndrome (SPS) analysis with an emotional video throughout social media, together with Instagram. The uncommon situation, which frequently impacts round “about one or two in 1,000,000 folks,” is understood to trigger a collection of neurological well being points, per John Hopkins Drugs.
“I’m sorry it’s taken me so lengthy to achieve out to you,” Celine stated in an Instagram video on the time. “I miss you all a lot and I can’t wait to be on stage speaking to you in individual. As , I’ve all the time been an open guide and I wasn’t able to say something earlier than. However I’m prepared now. I’ve been coping with issues with my well being for a very long time and it’s been actually tough for me to face these challenges and to speak about every little thing that I’ve been going via. Just lately, I’ve been identified with a really uncommon neurological dysfunction known as stiff individual syndrome, which impacts one thing like one in 1,000,000 folks.”
What Is Stiff Individual Syndrome?
Stiff individual syndrome could cause muscle rigidity and spasms, heightened sensitivity to sound stimuli and lights, in addition to emotional misery that may trigger muscle spasms, in accordance with the Nationwide Institute of Neurological Issues and Stroke. It’s so uncommon, it could possibly take years to diagnose and at current, there isn’t any remedy.
“It ceaselessly is related to muscle spasms, which might be fairly extreme. These could cause falls, extreme ache and vital incapacity,” stated Dr. Emile Sami Moukheiber of the Stiff Individual Syndrome Middle at Johns Hopkins Drugs, to CNN. “Falls from extreme spasms are quite common. These spasms might be precipitated by startle, extreme feelings, chilly climate.”
The reality is that the illness can manifest in such excessive ways in which some people with stiff individual syndrome, like this younger girl on TikTok, can’t even stroll on their very own.
How Lengthy Has Celine Dion Been Sick?
Celine has been scuffling with SPS for over a yr, as she additionally needed to postpone her excursions in April 2022. “I’m so sorry we now have to alter our tour plans for Europe yet another time; first we needed to transfer the exhibits due to the pandemic, now it’s my well being points inflicting us to postpone the exhibits. I’m doing a little bit bit higher…however I’m nonetheless experiencing some spasms,” she revealed through Instagram on April 29, 2022. The mom-of-three not solely needed to postpone the tour in April 2022, however she additionally was pressured to do the identical in December of that yr as her situation had not improved sufficient to return to the stage.
In April 2022, Celine stated she was “doing a bit higher”, nevertheless, the restoration was “going very gradual.” And eight months later, sadly, Celine was not recovering on the pace she had hoped. The situation impacts her capacity to stroll, use her vocal cords at “100%” capability, and extra. “I’ve an excellent workforce of docs working alongside me to assist me get higher, and my treasured kids, who’re supporting me and giving me hope,” Celine assured her supporters in Dec. “I’m working laborious with my sports activities drugs therapist daily to construct again my power and talent to carry out once more.”
The proficient artist first got here ahead concerning the well being situation in January 2022, nevertheless, she had not revealed the official analysis but. Celine launched a press release through Instagram and shared along with her 5.5 million followers that “extreme and protracted muscle spasms” are “stopping her from performing.”
How Is Celine Dion Doing At present?
Celine seemed to be on the highway to restoration, as she created new music for the 2023 movie, Love Once more, starring Priyanka Chopra. The Canada native appeared within the movie with Priyanka and Outlander‘s Sam Heughan. Celine took to Instagram in Nov. 2022, simply weeks forward of her analysis clip, to announce her look the rom-com. “See you on the motion pictures! Celine is starring alongside @priyankachopra and @samheughan and releasing new music for the romantic comedy LOVE AGAIN (new title!) coming to film theaters MAY 12 (new date!),” her workforce captioned the put up.
Her sister Claudette reportedly spoke to a neighborhood information outlet in Canada about her sister’s well being, as reported by Marca, in January of 2023. “I’m assured that life will give her again what she gave as a result of she is a particularly clever girl, very beneficiant and proficient and in love with life as properly,” Claudette stated on the time. “Somewhat than crying over her destiny, I attempt to ship her optimistic vibes within the hope that someday she’s going to return on stage. I really imagine within the energy of affection. I want her one of the best of luck, that’s for certain. She is surrounded by specialists as she works to recuperate.”
Celine has continued working to enhance her situation. With the announcement that she was canceling her Braveness world tour, she shared that she nonetheless couldn’t hit the highway. “I’m so sorry to disappoint all of you as soon as once more. I’m working actually laborious to construct again my power, however touring might be very tough even while you’re 100%,” she stated on Could 26, 2023. “I need you all to know, I’m not giving up… and I can’t wait to see you once more!”
Months after Claudette’s final replace on her sister, she reportedly spoke to Le Journal de Montreal (through SheMazing) in August 2023 to ship somber information about Celine. “We are able to’t discover any drugs that works, however having hope is essential,” Claudette reportedly informed the outlet. The involved siblings famous that she thinks Celine wants sufficient relaxation. “I actually assume that she largely must relaxation. She all the time goes above and past, she all the time tries to be one of the best and high of her sport,” she added. “At one level, your coronary heart and your physique are attempting to inform you one thing. It’s essential to hearken to it.”
A month later, Claudette opened up once more about Celine with one other replace. “She’s working laborious, however she doesn’t have management over her muscle tissue,” Claudette informed 7 Jours (through the Each day Mail) for a December 2023 interview. “What breaks my coronary heart is that she’s all the time been disciplined. She’s all the time labored laborious. Our mom all the time informed her, ‘You’re going to do it properly, you’re going to do it correctly.’”
Nonetheless, the household hasn’t given up hope for Celine returning to the stage. Claudette defined, “It’s true that in each our goals and hers, the objective is to return to the stage. In what capability? I don’t know.”
Oh yeah, Céline Dion is therapeutic and so is nature pic.twitter.com/TA7F8P2uwY
— Miguel 🌠 (@elasticdijon) March 22, 2024
In March 2024, Celine was seen having fun with a Bruins sport, the place she even stood as much as fortunately play air guitar, in accordance with a viral social media video.
Celine launched the primary trailer for her documentary I Am Celine Dion, which chronicles her battle with Stiff Individual Syndrome on Could 23, 2024. The trailer gave followers a glimpse of how her analysis affected her bodily and emotionally, in addition to her journey to return to the stage. The documentary will likely be out there on Amazon Prime on June 25.
Celine Dion #Paris2024 #Olympics #Olympic2024 pic.twitter.com/3f8Pm0qqrE
— @FanCelineDionIcon (@celinedionlcon) July 26, 2024
In July 2024, Celine made her triumphant return to the stage by performing “Hymne A L’Amour” on the opening ceremony of the Paris Olympics.
